One of these empowered e-patients is Janie Bowthorpe, owner of the Stop-the-thyroid-Madness-blog. In her book, she describes her ordeal with years of crippling fatigue, all the while her doctors told her "the labs were normal", and insisting she was adequately treated with Synthroid, the mainstream T4 thyroid medication. Apparently she was not adequately treated.
" The advent of the Internet plopped into the laps of hapless hypothyroid patients like gold by the turn of this century-the seed of a now-fervent global movement against a 50-year medical scandal.
In 1955, Knoll Pharmaceuticals of Germany developed the ever well-known Synthroid, a synthetic T4-only thyroid storage hormone pill. It was not the first time T4 was used. T4 was first isolated in 1914, then produced and used intravenously in 1926-27. But it lost favor due to its light and air instability, besides due to the fact that another treatment, desiccated thyroid, was working anyway.
When Knoll reintroduced it years later, they used strategic marketing, promoting it as a "new and modern" treatment and convincing doctors to switch nearly all hypothyroid patients to Synthroid by the 1960's. Later, other pharmaceuticals followed suit, promoting their brands of synthetic T4. Newly diagnosed hypothyroid patients followed suit.
In 2001, Synthroid was acquired by Abbott Labs through their acquisition of Knoll. By the next year, Wall Street Journal reported that Abbott was going to aggressively pitch the immensely popular Synthroid, "the fifth-most prescribed medication in the U.S." with roughly 44 million prescriptions each year. And that figure did not include those prescriptions for other synthetic T4 medications, which include brand names like Levoyxl, Unithroid, Eltroxin, Norton, and generic Levothyroxine.
Doctors all around the world fell into line with the treatment of synthetic T4 for hypothyroidism like good little soldiers.
A successful treatment?? Only in the minds of pharmaceutical-patsy doctors, say a growing body of hypothyroid patients who, thanks to internet contact, discovered they weren't alone in having lingering hypothyroid symptoms which doctors dismissed or bandaided with other pills.
I am one of those patients. And like the reported experience of a growing body of thyroid patients around the world, T4-only treatment left me with lingering hypothyroid symptoms for nearly two decades, even though a slew of doctors kept telling me "It's not your thyroid. You are adequately treated."
The lingering symptoms reported by T4-only treated patients all across the internet? Chronic low-grade depression, easy weight gain, dry skin and hair, less stamina than others, rising cholesterol, higher blood pressure, feeling cold, constipation, brain fog, low sex drive, poor exercise tolerance, heart problems, a need to nap, prenancy issues, anxiety, poor stress tolerance and a slew of other hypothyroid symptoms.
Adding insult to injury, patients report doctors being as clueless as they are rigid, denying continuing symptoms as being related to T4 treatment, and persistently prescribing it come hell or high water.
Equally as maddening is the ignorance that abounds in the medical community about a treatment that has removed those lingering hypothyroid symptoms: a grassroots return to prescription desiccated natural thyroid aka Armour, Naturethroid, etc.-- the very hypothyroid treatment that was successful for decades before it was replaced.
Natural desiccated thyroid contains exactly what your thyroid would be making: T4, T3, T2, T1 and calcitonin.
Patients are flocking to Armour and other desiccated thyroid as fast as they can find a doctor to prescribe it, which for many, is as difficult as finding a Republican to wrap his arms around Obama's stimulus package. But a small but growing body of doctors are embracing desiccated thyroid, even though the majority still have a long way to go.
A recent three-part blog post by endocrinologist and osteopath Thomas Repas, DO, FACP, FACE, CDE on the website Endocrinology Today best represents the current struggle between doctors rigid beliefs in Synthroid and other T4-only brand treatment, and patients frustration and struggle in educating their doctors about a far better treatment.
In fact, patients will repeatedly report that Endocrinologists have been the worst nightmare when it comes to thyroxine treatment rigidity and ignorance about a better treatment with desiccated natural thyroid. On my patient-to-patient activist website, there is a compilation of statements made by doctors, especially Endocrinologists, and reported by patients, and you can multiply those statements by thousands according to patients who repeatedly report them.
This patient movement is not going to go away. Synthroid and other T4-only medications have not worked well for the majority for fifty years, and will never work as well as desiccated thyroid. Sure, there will always be some patients who claim they do fine on T4-only. But as they age, the proof will be in the pudding, because the body is not meant to live on a storage hormone alone." end quote Janie Bowthorpe.
I want to thank you for your positive review of my book, Stop the Thyroid Madness, both on your excellent site and OpEdNews. I've also been using OpEdNews to spread the word about hypothyroid treatment. lol.
Of course, I can't help but be tickled as an author to have good reviews! But I am very aware that this goes far beyond me, as the medical system is in the height of stupidity in its diagnosis and treatment of hypothyroidism. The UK's Royal College of Physicians came out with their pompous ignorance this February.
See my article on this.
http://www.opednews.com/articles/The-Royal-College-of-Physi-by-Janie-Bowthorpe-090210-698.html
So the Stop the Thyroid Madness movement goes beyond just me and is important, representing a large and growing body of thyroid patients around the world who are proving them completely wrong! Now I have to reach those hundreds of millions who live their compromised lives silently on thyroxine, as well as those who keep getting a "normal" diagnosis thanks to an unreliable TSH test of their pituitary hormone!
Reviews like yours play a huge part in continuing to reach these people somehow. Thank you for what you do! And by the way, your website is absolutely excellent and you are on the website STTM's recommended website list. Also, you'll be included in the second edition of the book.
Also, please add
http://www.stopthethyroidmadness.com
after my name at the end to help thyroid patients find it easier.
We're going to win this battle!
Janie Bowthorpe
http://www.stopthethyroidmadness.com
Click Here for Link to
Stop the Thyroid Madness Blog
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Thanks Janie, for your kind words. Working together we will win the medical information war and change thyroid medical practice for the better.
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I am 30 years old and I've been taking Zoloft for a few years now, I think since about 2004. Before that I was on Paxil CR, and it was the highest dose of that as well, if I recall correctly, it was 37.5 mg/day.
Now, I'm at 100mg of Zoloft, anyway....I have a question regarding what to do if you've tried to taper off of the SSRI drugs and it doesn't do anything but make matters worse?!?! I've done this a number of times per my doctor, first with the paxil and wound up on the Zoloft because he said it would create less side affects to use the Zoloft perhaps.
Well on top of all of this, I have hypo-thyroidism and I am on Levothyroxine for this (150 mcg/daily). I originally started taking the paxil due to a bit of stress in my life at around the age of 20.
I was having panic attacks and anxiety on the verge of depression. Well, like I said before, I've tried to get off of these drugs, and it's been UNbearable. I was extremely shaky, paranoid, stomache cramping (severe), as well as night sweats, and random cold sweats during the day.
I had come to the conclusion that maybe I have to take this JUNK for the rest of my life. But I'm NOT HAPPY with that answer ANYMORE!!! I want to be rid of it, I believe that it's the reason for many side effects that I never had before.
I've had weight gain that I CANNOT get off, loss of interest in things that I ALWAYS enjoyed before, and the sex drive thing is having a dramatic effect on my marriage at times and just drowns my self image. I used to love things, and now I don't EVER know how to feel about anything good or bad.
I'm just tired of all of this and looking for some answers that maybe my dr's haven't given. By the way, I've tried psychologist that wanted to put me on multiple SSRI's as well, and I said ABSOLUTELY NOT!!! Not to mention I've tried Lexapro instead, which had the same side effects of being off the drugs, and I refuse to try anything else, I don't want to substitute, I want to QUIT!!!! Please let me know if you have any further suggestions on how I may taper off of this medicine. I
f I remember correctly I would say that I was tapered by reducing the 100mg/day to 50mg for 2 weeks, then to 25mg for 2 weeks, then to 25mg every OTHER day for 2 weeks, then 25mg every 2 days for one week.....I'm not positive that was the exact regimen, but it was very close if nothing else. Please tell me if there's a better way!!! I'm determined, if not now, then one day.....but I WILL DO IT!!!
JB
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Dear JB,
Contrary to the deceptive television advertising messages, more SSRI drugs is not the answer to health. A truly healthy life style is one free of mood altering drugs. Good luck on your quest for a drug free healthy life off of SSRI drugs.
Jeffrey Dach MD www.drdach.com disclaimer
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I was diagnosed with hashimotos in 2001. Recently in 2009, I had a thyroid scan after repeated complaints of sore throat and difficulty swallowing.
Thyroid ultrasound report came back with nodule with mild peripheral vascularity within the inferolateral thyroid and within right thyroid lobe hypoechoic noncalcified sharply circumscribed nodule with mild peripheral vascularity and no perithyroid lymphadenopathy or fluid.
Doc said I have to take something to suppress the growth of the nodule. And secondly, Doc gave me 6-7 different thyroid drugs. They all give me side effects even at the lowest dosage and never took care of my menstrual issues, PMS, irregukar bleeding etc.?
One endocrinologist said she doesn't know what to do with me a second said to increase dosage of thyroid meds, but I didn't feel good on the meds, any natural meds I can take at the health food store, which one?
My T4 free is 0.8 and TSH is 17.35?
from anonymous
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Thanks for your comment.
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